Archive for the ‘Events’ Category

 

2010 Climb to Cure Duchenne Announced! – 28. January, 2010

This week CureDuchenne was very happy to announce our first “CureDuchenne Adventure,” the 2010 “Pick Your Peak.” Climbers from across the country will form teams and climb mountains, hills or hiking trails during the weekend of June 19-20 to raise awareness for Duchenne muscular dystrophy(DMD) and funds for DMD research.

Duchenne is the most lethal childhood genetic disease. In June, families and advocates will join together and shout from mountaintops across the country that DMD needs more attention and more funding for research. CureDuchenne will lead a national publicity campaign for this event and a mini-documentary will record and publicize the efforts of climbers across the country as they fight for their sons.

We are looking for 200 team captains to assemble teams which will each raise a total of $5,000. This means $1 million going directly to research that could potentially save the lives of thousands of boys now and into the future. CureDuchenne will make it really easy to set up your fundraising pages and help you promote your local climb.

Some climbers may desire to attack a major mountain like we did in 2009 when our team of 12 climbed Mt. Rainier. If you would like to target a major mountain, CureDuchenne can help you with the training and logistics. But remember, No mountain is too big or too small.

As one of the 2009 Mt. Rainier team, I can tell you that this was a life changing experience. The camaraderie we developed with our team and the sense of actively doing something that can help our boys was something I’ll never forget.

Please click on these videos to see learn more:

This Year’s 2010 Climb to Cure Duchenne Announcement:

Last Year’s 2009 Mt. Rainier Climb Mini-Documentary:  

Here’s the link to sign up for the climb as a team captain or to find a team that’s being formed. We are happy to answer any questions you have.

Sign Up Today!

See you on the mountain top!

Debra

Posted in Events

Coach Mack Brown and wife Sally help Cure Duchenne – 20. April, 2009

Debra Miller, Tim Revell, Sally Brown

Debra Miller, Tim Revell, Sally Brown

Parents can make a difference for their boys with Duchenne! 

Tim Revell has been running marathons and hosting golf tournaments in Austin to raise money and awareness for Duchenne muscular dystrophy.  His dedication received the attention of University of Texas head coach, Mack Brown and his wife Sally.  Mack Brown so generously donated to CureDuchenne the $10,000 that he received from the Bobby Dodd Coach of the Year Award.  Sally Brown hosted the “Caffeinate for the Cure” last Friday and has become a spokesperson for CureDuchenne in Austin. 

Channel 8 was there to cover the event:

http://www.news8austin.com/shared/video/video_pop.asp?destlist=65057

 or read about it: 

http://www.news8austin.com/content/sports/?ArID=238219&SecID=5

Tim and his wife Laura had never organized a fund raiser before their son was diagnosed with Duchenne.  They didn’t let that stop them.  I encourage all parents to join in raising money for research…start small and great things can happen.  Our sons are worth the effort it takes and CureDuchenne will support you in getting started.

 Daryl Parrish, father of another Austin boy with Duchenne is running this morning in the Boston Marathon for the CureDuchenne Crusaders.

Posted in Events

Parents Working Together to Cure Duchenne – 12. March, 2009

The Cure Duchenne Crusaders will be climbing to the summit of Mt. Rainier in Washington state to raise money and awareness for Duchenne muscular dystrophy.  Bill Procko, father of a DMD boy, created this event and will be our team leader on August 29 - September 1 as we brave the elements to reach 14,411 feet.  Our team, made up of 3 dads and 3 moms of DMD boys, 2 scientists, 2 Catchpenny band members, 1 film guy, and CureDuchenne’s business development specialist will brave the elements to reach the summit.  Each of us is comitted to raising one dollar per foot, or $14,411, which will fund Duchenne research.  You can donate to our cause by sponsoring here:  http://www.firstgiving.com/debracureduchenne

Bill and Kim Procko also surprised us this week when they announced they will fly out from Florida to attend the  “2009 Dealing for Duchenne” celebrity poker tournament at the Petersen Automotive Museum in Los Angeles.  In addition, Bill and Kim will be bringing with them close to 100 auction items that they have been collecting over this past year.  Chris and Amy Martin, hosts of this event will work with the Procko’s to make this even better than last year’s blockbuster event.

Together we can…Cure Duchenne!

Posted in Events

Cure Duchenne Draws Star Power – 17. July, 2008

Where there’s a “Will” there’s a Way!

willThanks to the Martin family and Prosum Technology, Title sponsor for Dealing for Duchenne, our first Los Angeles fundraising event was a star-studded success. Held at the famous Petersen Automotive Museum in Los Angeles, this event raised $200,000! Our sincere thanks to Willie Garson (Sex & the City), Anne Heche and James Tupper (Men in Trees), Josh Malina (West Wing), Joel Murray (Still Standing & our celebrity auctioneer), Hayley Norman (Hancock) and Kevin Weisman (Alias) for their compassion and commitment to helping us find a cure for our boys.

Thanks to Ralph Garmon’s promotion of our event on the Kevin and Bean show on KROQ, 450 attendees joined the fun. Everyone had a great time mingling with the stars, dining on fabulous cuisine from Wolfgang Puck’s, gambling and bidding on more than 150 great auction items.

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Posted in Events

Cure Duchenne Public Service Announcement – 17. July, 2008

Part of our challenge is that very few people know about Duchenne…until it affects their lives. Help us get the word out to your local media. Contact your local TV and radio stations and ask them to view our video and play it on air. Don’t get discouraged if you don’t get immediate responses. It’s like kissing frogs…you may have to kiss a hundred before you end up with a prince.

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Posted in Events